The 2019 Midwest Genetics Network’s Annual Meeting was held on October 1st and 2nd at the James B. Henry Center in Lansing, Michigan. Fifty stakeholders from Illinois, Indiana, Kentucky, Michigan, Minnesota, Ohio and Wisconsin and included representatives from; state public health, genetic service providers, primary care providers, and family representatives.
On the first day, the participants received an update on the Midwest Genetics Network from the MGN leadership. Each workgroup presented on the past year’s progress in addition to the future direction of their workgroups. The National Coordinating Center (NCC) presented on the efforts of the NCC and Regional Genetics Networks. Family Voices presented on cultural agility. The first day ended with the Health Equity, Telegenetics, and Provider workgroup in person meetings.
On the second day, Family Representatives were able to network with each other while sharing ideas for family and patient involvement in the next funding cycle. Discussion centered on workgroup structure, level of involvement, diversity of families, additional recruitment ideas and maintaining a strong commitment to ensure meaningful participation and contribution from family and patient representatives.
During the plenary session, representatives from each work group reported on their meetings and had discussions with the meeting participants. The topic of the plenary session was “The Amish-Culture, Medical Care and Genetic Disorders.” The meeting ended with the MGN Closing Plenary.
Please click on the links below to view the meeting agenda and presentations. If you would like any additional information regarding the 2019 MGN annual meeting, please contact us at firstname.lastname@example.org.